The Human Variome Project provides a central repository hub for global data sharing of genetic information with direct application to improving global health.
One way to address the global challenges of public health in developing countries is through international collaboration to share data.
It is important to do this not just for humanitarian reasons but because open information is at the heart of scientific progress.
One field in which this is particularly evident is genomic research, which has made revolutionary progress in recent years. There has been an explosion in research to discover the function of each of the twenty thousand or so human genes.
via The Human Variome Project | Science & Diplomacy.
One of the main goals of UNESCO is the development of international science that meets social needs in health, food, education, and other standards of living.
The Human Variome Project establishes and maintains the necessary standards, systems and infrastructure for genetic knowledge sharing, offers training and education for clinicians, researchers and the general public and works with individual countries to build their medical genetics and genomics capacity.
These activities promote the development of better genetic services and will lead to the improvement of genetic treatment and diagnostic abilities worldwide.
via The Human Variome Project – Sharing data – Reducing disease
Rare genetic conditions can teach us about our own health and well being.
People with rare genetic conditions hold the keys to medical problems affecting millions.
Hardcover – April 15, 2014
by Sharon Moalem MD PhD (Author)